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William Collins
An imprint of HarperCollinsPublishers
1 London Bridge Street
London SE1 9GF
www.WilliamCollinsBooks.com
First published in Great Britain by William Collins 2015
Text © Kate Gross 2015
Kate Gross asserts the moral right to
be identified as the author of this work
A catalogue record of this book is
available from the British Library
All rights reserved under International and Pan-American Copyright Conventions. By payment of the required fees, you have been granted the non-exclusive, non-transferable right to access and read the text of this e-book on screen. No part of this text may be reproduced, transmitted, down-loaded, decompiled, reverse engineered, or stored in or introduced into any information storage retrieval system, in any form or by any means, whether electronic or mechanical, now known or hereinafter invented, without the express written permission of HarperCollins.
Cover handwriting by www.ruthrowland.co.uk
Source ISBN: 9780008103453
Ebook Edition © January 2015 ISBN: 9780008103460
Version: 2015-07-23
Dedication
There are two copies of this book that matter. There are two pairs of eyes I imagine reading every word. There are two adult hands which I hope will hold a battered paperback when others have long forgotten me and what I have to say. I write this for Oscar and Isaac, my little Knights, my joy and my wonder.
Contents
Cover
Title Page
Copyright
Dedication
Introduction
1 The Plastic Bag and the Red Coat
2 The Terracotta Army
3 The Landscape of Your Mind
4 A Pile of Golden Treasure
5 The Original Four-Square
6 The Woman in the Arena
7 Earthquakes, and the Light They Let In
8 Cantus Firmus
9 What’s Love Got to Do With It?
10 Sing, Everyone
Acknowledgements
Bibliography
Postscript
Credits
About the Author
About the Publisher
Introduction
When I was three, I told my mum that I kept my words in my head, in a clear plastic bag. Now it is time for me to take them out, to arrange them into this story. The thing is, I don’t know how it ends. I don’t know if I will die before I finish writing it. But if I do, I know someone else will write the ending for me. My mum will step in to close off my story, just as she used to step in to help with my homework. So I can begin.
We will start on 11 October 2012. I am running along the beach in Southern California. It is dusk, and as the waves break on the shore, surfers head out to sea. My legs feel strong, my lungs full of salty air. I’m here to raise money for the charity I run, which works in post-conflict Africa. I’m a successful thirty-something woman with an amazing job through which I travel the world and converse with presidents and prime ministers. My adorable twins are three, and their father, Billy, is my soulmate, as well as being the best-looking man I’ve ever kissed. But inside me a lump of cells has broken free of the rules and spawned a tumour which has blocked my colon, crept through my lymph nodes and colonised my liver. Cancer is halfway to killing me, and I am completely oblivious to its presence.
The next day I am at the airport, my week-long trip over, and finally on my way home to Cambridge. As I arrive at check-in, I am hit by a wave of nausea. I throw up for fifteen hours – through security, in the lounge, and all the way back home. I feel feverish, exhausted. Now, at last, I know something is seriously wrong. I crawl into a taxi at Heathrow and ask the driver to drop me off at the emergency department at Addenbrooke’s, our local hospital. A CT scan follows, and twelve hours after landing in the UK I am in emergency surgery. The blockage in my colon is a tumour, and the dark spots the doctors saw on my liver a series of secondary lesions – metastases, to use the proper term. I have stage four cancer. All this cancer-speak is new to me, but I do know there isn’t a stage five. What I didn’t realise then – though of course the ever internet-enabled Billy did, right from the start – was that I had only a 6 per cent chance of surviving the next five years.
Now we are more than two years on from that, the first earthquake to hit our little family. Two operations, six months of chemotherapy, and a brief, joyful remission filled that interlude. But now the cancer is back. It has spread, it is incurable. I will die before my children finish primary school, and probably before they reach the grand old age of six, which they think is impossibly grown-up, and I think is impossibly young. It won’t be long now.
I began to write straight after my diagnosis. And as soon as I started to type, the words emerged, as prolific at reproducing and ordering themselves as the malignant cells inside me. Everything I wrote was a gift to myself, a reminder that I could create even as my body tried to self-destruct. And I wrote as a gift to those I love: my living, breathing Terracotta Army. Now the words spill out of my plastic bag like the magnetic letters my children stick on the fridge. I write to make sense of what has happened to our family, to make sense of the Kate who has emerged in this strange, lucid final chunk of life. I write because the imprint of disease is growing in me, and like a poor man’s Keats I find myself full of fears that I will have to stop ‘before my pen has glean’d my teeming brain’. Before I can write down all the things I want to tell my boys when they are thirty-five, not five. Before I can tell them who I am, and what I know, and the stories that make up my life.
Someone asked me what was the best thing cancer had given me. I collapsed inside when she said that. Cancer is a pretty terrible kind of gift. It takes and takes and takes, leaving a trail of destruction in its path. It’s taken the future I had planned for myself: a career doing Good Things, travelling the world, being important and successful on the terms I had long set myself. It’s stolen the take-it-for-granted ease from my relationship with Billy. What’s easy about being thirty-six and having your husband nurse you in your dying days? We should be bickering about who takes the bins out, not having heart-to-hearts about how I want our children raised. It’s taken away my ability to care for others – by now, I should be helping out my parents, but instead they are visiting me in hospital and picking my kids up from school. They are suddenly ‘spare’ parents, not grandparents. It’s taken the reciprocity out of relationships. Suddenly I am the visited, never the visitor; the receiver, not the sender of cards and presents. And it’s taken away my ability to be the mother I want to be. Where I should be careless, bossy, energetic and distracted, now I am diligent, soft and weak, because I can’t bear to be remembered as bad cop. Every cuddle is charged with electric joy at their being there, and misery that I won’t see their future. I find myself lying in their beds as they sleep, crying hot tears into their pudgy necks.
But disease gives as well as it takes. Or, more accurately, we take from it even in the face of its efforts to take everything from us. And so my friend was sort-of-right. What disease has stolen is the normality I took for granted and the future I would have had. But I have taken from it, too. For starters, there is a feeling of being alive, awake, which powerfully reasserts itself in the moments of wellness that punctuate a long illness. I can only explain this feeling as rather like your first time on Ecstasy, but with less pounding music and projectile vomiting. Whether it is emerging from chemotherapy, or waking up after operations, I have experienced joy – perhaps even the sublime – in an unexpected and new way. The first time this happened was in the incongruous setting of Ward L4, on the night after my first diagnosis. I opened a window in the middle of the night and leaned out to feel the cold autumn rain on my face, mingling with sharp, blissed-out tears.
Then there is the way I feel about the people in my life. Billy and I have grown a love known only in power ballads, a depth of understanding and companionship which in any fair world would last us a lifetime. My parents, now closer physically as well as emotionally. Friendships which survived on the leftover bits of time have had a renaissance. And while I like to imagine that the world may have lost a future stateswoman, I have found my voice, and with my voice an intellectual and spiritual hinterland which had been lost for too long between the answering of emails and the wiping of tiny bottoms. I am woman, hear me roar.
So despite all that has been and will be taken from us, I am happy. I am really, truly happy. These last years have been so strangely luminous, full of exploration, wonder and love. I’m not sure if this adds up to a silver lining, whether it amounts to enough to balance the loss of the future I should have had. Some days it seems crazy even to suggest it. But it at least makes the scales more even.
I am writing this book to share the sum of a life. In a normal world, I would have been granted decades to say all of this. Fat, old and wearing purple, I would have bored my children and my children’s children with stories of the world I had known. Perhaps they would have asked me about the crazy Noughties, the dying days of capitalism, what it was like working in the heart of government when America was king and credit was easy. Or perhaps they would have been more interested in my stories about Africa in the bad old days of hunger and warlords, before Lagos became a place you emigrated to, not from. Maybe they would just have wanted to know what my favourite books were as a child, what my earliest memories were, about how Billy and I fell in love. But I am living at an accelerated pace now. We won’t have those conversations; but my children will always have these words.
1
The Plastic Bag and the Red Coat
A certain minor light may still
Leap incandescent
Out of kitchen table or chair
As if a celestial burning took
Possession of the most obtuse objects now and then –
Thus hallowing an interval
Otherwise inconsequent
By bestowing largesse, honour,
One might say love.
SYLVIA PLATH, ‘BLACK ROOK IN RAINY WEATHER’
There was a moment, a decade or so ago, when I was walking across Clapham Common on a grey winter day. The sky was flat and far too close to my head. I was in a no-particular-sort-of-mood, probably on my way to spending an afternoon in the pub. Or shopping. Anyway: engaging in delightful, consumerist, meaningless modern life. And then I saw a child in a red coat, and I experienced a moment of absolute, pure wonder. Joy, transcendent and uplifting. Did I borrow this memory from the film Schindler’s List? Or perhaps this unexpected moment of joy reminded me of watching a scene from another film, American Beauty, in which the teenage anti-hero films a plastic bag with tender attention as it swirls around, suspended in the air, capturing every twist and flutter. No, I believe this memory is my own: there is wonder in the everyday, if you can only see it.
I am not pretending that I go round all the time having this kind of experience. Or that I see it only in red coats, or indeed in plastic bags. It is just that if I could give my children one thing, it would be this capacity to be astonished by the quotidian, to experience joy from the world they live in. I would work out its formula and put it into a pair of superhero glasses – me and the former dean of Westminster Michael Mayne both, who wrote in his letters to his grandchildren: ‘If I could have waved a fairy wand at your birth and wished upon you just one gift it would not have been beauty or riches or a long life: it would have been the gift of wonder.’ But it doesn’t work like that. We all have to find wonder for ourselves. All I can do is explain how wonder emerged for me as the world and I met, and how it has grown stronger and brighter even as my world has got smaller and dimmer.
I can spread my childhood memories out like a patchwork quilt. My quilt is brightly coloured, richly textured, a mix of the familiar and the foreign. My parents showed me the world from an early age, and experiencing it – drinking in the astonishing wonder it provides – has made me who I am. Because of them, ‘the ears of my ears awake and the eyes of my eyes are open’, as ee cummings put it. Aged about four, I saw a mongoose eat a snake on the banks of the Creek in Dubai. We used to go into the city on a Friday night for curry. In one corner of the garden of the small and scruffy café by the water sat a big cage. And inside the cage lived a mongoose, and the mongoose was fed snakes. After our curry we would have freshly squeezed fruit juice in a small bar staffed by nice Indian men who would pinch my fat, freckly Caucasian cheeks. I remember our weekend trips to the beach, where we would camp under enormous, starry skies. In 1986, age seven and three quarters, I lay on the cold sand with my friend Georgia, and watched Halley’s Comet fly overhead. We made a solemn promise that we would watch it together on its next cycle through the sky, when Georgia will be in her eighties and I will be long gone. During the hot, cloudless days we would blow up our inflatable lilos and drift out into the clear waters of the Persian Gulf in search of the Utter East. In the shallow seas, stingrays lurked under the rocks along with the cuttlefish. At night we children would whisper ghost stories in our tents as the heat of the day gave way to the cold desert night, until we were lulled to sleep by the sounds of our parents drinking cold beers around the campfire.
Because I was brought up far away, in a dusty, dry place where the inside of our blue Toyota was like a metal furnace most of the year round, England felt very foreign to me. Our summers spent in the Wiltshire countryside were as full of wonder as anything I experienced abroad – the everyday stuff of an English childhood rendered foreign by the exotica of my life on the Arabian Peninsula. I remember sunshine and an abundance of soft grass, so different from the scratchy Astroturf of our garden in Dubai. Smooth green banks of grass to roll down, to somersault over, to play leapfrog on. Delicate, pastel-coloured flowers waiting for me to snip them and stuff them in my flower press; flowers which for the first time in my experience looked as if they might actually house fairies, unlike the gargantuan, ferocious flora of the Middle East. Gentle, small butterflies landing on the buddleia outside Court House in our little village of Bishopstone, waiting for me to swoop in with my net. Paddling in too-cold streams with trousers rolled up, learning how to build dams.
As a family, we are travellers. Exploring is part of our DNA, just as much as being shortsighted. We are addicted to the smell of elsewhere which hits when you descend from a plane, the excitement of buying milk in a foreign supermarket. My grandfather spent his war in the intelligence corps, in India and Burma, and returned to India with the BBC afterwards. Mum remembers the presents he brought home: exotic silks and carvings, and stories of a place which captivated him. In Kathmandu, when I was six, I saw the Living Goddess, a girl about my age who was locked inside an ornately carved wooden house, with dark kohled eyes and a shiny red and gold dress. How I envied her then, being chosen to be a goddess. But I thought she looked so sad, and as though she wanted very much to be able to play as I could. In Thailand I smelled the cloying odour of durian fruit while we floated down the khlongs of Bangkok. Butterflies of incredible size and colour flitted around me as we walked through the jungle. Black leeches attached themselves to our feet and legs as we hopped over enormous puddles and overflowing rivers in the pouring rain. As a child brought up in the desert, this was my first encounter with the many-shaded green of the tropics, the clichéd wonder of independent travel which would only grow during my university holidays.
There are so many places I wanted to take my boys. Places I have been and seen, and places I have not. To India, to see the coracles floating down the river at Hampi and to hear stories of the oldest civilisations. To Vietnam, to eat soft-shell crabs on a street corner while you watch the future take shape in the concrete flyovers and skyscrapers above you. To California, to experience everything super-sized, including the boundless optimism and confidence of the glossy-haired, honey-limbed natives. To Africa, to see the misty thousand hills in Rwanda and to understand how a people can tear themselves apart and remake themselves in a generation, because history is not a death sentence. To Egypt, or maybe Morocco, to see souks and pyramids, riads and the simple, mesmerising shapes of Islamic art. To mountain ranges where you feel the bliss of solitude as you glide in a silent chairlift amidst deep, silent snowdrifts. To tropical seas as clear as glass, where you can enter another world underwater, watching turtles and stingrays glide through shoals of magically coloured fish.
I won’t take my children to those places now. But still, I try to guess how and where they will experience the wonder that will make them see the world anew. Perhaps it has already come, in the Botanic Garden in Cambridge. There, we run round the lake, climb mountains, explore jungles and cross rivers on stepping stones, and are still only a mile from our front door. Or in the places we have already been: stretching our legs to cross the slippery stones of the Giant’s Causeway, with the myths of Finn McCool ringing in our ears. Or in the magical house in France my dad built, where it never rains, the swimming pool is always blue, and a snake called Oliver Cromwell lives under the veranda.
The point is, I don’t know how they will experience the world, any more than I can guide them through it. I hope that its breadth and variety will provide them with the endless thrill it has for me. But staying at home is fine too. I need them to know that wonder doesn’t require a passport, it only requires your attention. My dad has always been evidence of that. He’s a traveller too, and he told me once about wonder emerging for him as he surveyed the wild cliffs of St David’s in Wales as a long-haired, dope-smoking student (remember, it was the Seventies). But his truest sense of wonder has always been found in a smaller world around him. He sees things, you see, in the details: the curve of a white tulip petal, the way a tree branch stretches over a lake, the perfect structure of the green hills and the flat causse near the house he built in France. Like Emily Dickinson, his holy trinity is the Bee, the Butterfly and the Breeze. He is a man who takes joy from his surroundings, someone who like Thomas Hardy considers himself a man who notices things.
How strange, how brilliant it is that this awareness of wonder, this sense of the sublime, has been so closely intertwined with my illness as it has progressed. How incredible that Ruskin’s duty to delight in the world around has grown stronger in me as I have grown weaker.
But before I go any further, I had better tell the story of how the cancer inside me – the beast I know as the Nuisance – started, because it is the frame for everything else that follows.
I’ve always had a dodgy bottom. I presumed it was irritable bowel syndrome. I guessed it had been exacerbated by the various terrible afflictions of the innards I obtained while working in India, where I taught for a few months post-university. Within a month of arriving there I was sustaining myself only by gulab jamun, the gelatinous, sticky Indian sweets. Everything else on the school’s menu, including the inoffensive-seeming parathas, had left me squatting painfully over the stand-up loos or running out of assembly to vomit in the verdant flowerbeds. Clearly, I thought, there was some mutant worm growing inside me. I nuked it with antibiotics when I got home, but I seemed to be left with something permanently wrong down there. In a very British style, I ignored it valiantly for about seven years. By then, I was anyway busy with being a young and ambitious worker bee, and falling in love.
It was only when I paused and left London that I vowed to get my health sorted out. We had moved to Cambridge – home of Billy’s technology start-up, which he’d founded the very month he and I went on our first date, in 2004. It was my turn to do the commute to London, but I was avoiding that, and indeed reality in general, by going back to university to do a Masters. Being a student again gave me plenty of time to go and get things checked out. After I had described my symptoms to my GP, she sent me off to hospital, where they put a little camera up my bottom. The nice consultant found nothing to worry about, and told me to eat more fibre to regularise things down there. Little did I know, not being the bottom-health expert I now am, that I had only had a sigmoidoscopy: in layman’s terms, a camera that peeks only partway up your arse, rather than exploring the whole lot. If the camera had poked a bit further round my innards, the consultant probably would have found an adenoma, a pre-cancerous little polyp in my colon. He would have cut it out, I would have been booked in for regular screening, and life would have proceeded to plan. But that didn’t happen. To make matters worse, I always confidently told subsequent doctors I had had a clear colonoscopy, and that everything down there was Just Fine.
In any case, the ensuing years were eventful for other, more pressing reasons. With (I thought) my health problems sorted, I got pregnant in 2008. My twelve-week scan revealed two little swimmers thrashing around in my uterus. Twin boys. Billy and I were petrified. Like cancer, twins didn’t run in the family. What were the chances? One in eighty, apparently, significantly greater than the one in twenty thousand chance of getting colon cancer aged thirty-four. But back to the story. In May 2009 my little swimmers emerged, full-term and healthy. Motherhood took over my body and my mind, as is its way. I was swept along on a wave of oxytocin, and apart from the sleep deprivation felt happier and healthier than I ever had.
Being a mother consumed me, and what energy was left over I applied to work. Halfway through my Masters I had set up the Africa Governance Initiative, working again for our former prime minister Tony Blair. Not only was he the smartest, kindest and most relaxed politician I had ever worked for, he also had a belief in the role of government as a force for good which profoundly appealed to my public-servant heart. He wanted to use what he’d learned in ten long years in power for the benefit of some of the poorest people in the world, by working with the leaders of Africa’s emerging democracies, countries coming out of years of war and mismanagement. As someone who had always seen myself as a bureaucrat with the heart of an explorer, this seemed like a perfect fit. With Tony working alongside presidents and prime ministers, the charity we founded put teams of international staff – capable, passionate, bright young things – into the heart of burgeoning democracies, countries like Liberia, Rwanda and Sierra Leone. There we worked with many incredible African public servants, sitting alongside them in bombed-out, sweltering buildings, with more chickens in the corridors than staff in the offices, assisting with the task of rebuilding a country and shaping a fair, effective and clean government. Between wrangling with twins and being CEO of this new enterprise, I didn’t have much time to worry as my old bottom troubles worsened. Anyway, it was all too easy to blame things on the Rwandan goat brochettes.